tag:blogger.com,1999:blog-5959529932552268576.post4776322102315199171..comments2023-10-10T08:22:10.419-07:00Comments on 3 Russell Moose: PerspectiveCarleehttp://www.blogger.com/profile/15275690940710839637noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-5959529932552268576.post-53719067124618245732011-11-18T08:48:51.791-08:002011-11-18T08:48:51.791-08:00We have this conversation A LOT. In many ways the...We have this conversation A LOT. In many ways there is nothing wrong with Nate but yet, every day, we have to think about what he will eat, where he will be, if there is a sub in his room will they know what his restrictions are? Leaving him with a babysitter requires discussion about epi-pens and 911. At least once a week he refuses to eat b/c of reflux/nausea. He continues to drink 30 calorie per ounce formula just to give him enough nutrition to "keep up". Every time he has anesthesia I stop being an MD completely and am only a terrified mom. But he's not "sick". He's perfect. I can't imagine having a baby with something truly incurable, of living every day with the knowledge that your baby's lifespan is limited. Sometimes I come to work and I just feel selfish for wanting to drop him off at school and let him eat scrambled eggs with everyone else. We are lucky and we know it. But, in the end, that doesn't change how it feels to worry about your child.Jenniferhttps://www.blogger.com/profile/07697393759486001316noreply@blogger.com